Group “Get Together” on Saturday, August 24
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Please join us at our next get together in just nine days! We’ve invited a speaker whom we know will have an impact on how we all view the future for our children and adults with Fragile X Syndrome. Let us know you’re coming so we have enough chairs!
Date: Saturday, August 24, 2013
Time: 9:00 am – 10:45 am
Walk Planning Meeting (everyone is welcome to either sit in or get involved)
11:00 am until 12:00 pm
Featured Speaker: Anne Hull, Board Member, Past President and Founder Heartstrings Community Foundation
Place: University of Kansas, Edwards Campus
Corner of Quivira and 127th Street (entrance faces 127th), Overland Park, Kansas 66213
RSVP: kansasfx@gmail.com or Donna Beauchamp @ 913-406-2424
Anne Hull is the mother of two adult sons with Fragile X Syndrome. She will share her experiences and the changes that come as our children get older. We’ll hear how she came to form Heartstrings Community Foundation to help her boys and others. We’ll also hear what she sees in the future for services for people with Fragile X. Anne and her family reside in Leawood, Kansas.
“Heartstrings Community Foundation assists adults with developmental disabilities to live meaningful, independent, productive lives through interactions within the community.”
http://www.heartstringscf.org/
The Kansas Fragile X LINKS Group is affiliated with the National Fragile X Foundation. Our co-leaders are Brooke Stack & Donna Beauchamp.
kansasfx.org
