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3rd Annual New Directions in Fragile X Conference – February 22, 2014

January 16, 2014

URGENT!  Please note that the location of our conference this morning at KU Edwards Campus has changed!  We will be in Room 110 of the Regents Center.  Please enter and park on the East side of the campus (Quivira and 126th).

Please join us for the 3rd Annual New Directions in Fragile X Conference, February 22. 2014 at the University of Kansas, Edwards Campus, 127th and Quivira (entrance to Ragnier Hall is off of 127th; link to map, Overland Park, KS.

Fragile X Across the Life Span:

Behavioral and Educational Strategies,

Peer Relations and Adult Options

Featured Speakers:

Dr. Marcia L. Braden, Ph.D., P.C.

Dr. Braden is a licensed psychologist with a clinical practice in Colorado Springs specializing in children and adolescents. She is a former teacher with experience teaching general and special education. She has written and published numerous articles related to education and behavior management strategies, techniques, and interventions. She is a contributing author to the book Fragile X Syndrome; Diagnosis, Treatment, and Research, compiled and edited by Drs. Randi and Paul Hagerman (Mind Institute) and Children with Fragile X Syndrome: A Parent’s Guide, edited by Jayne Dixon Weber.  She is the author of Fragile – Handle With Care: More About Fragile X Syndrome.

Dr. Braden is a member of the Scientific and Clinical Advisory Board to the National Fragile X Foundation and is a member of the Advisory Committee for the HillSprings Learning Center.

Dr. Braden frequently consults with parents, therapists, educators, and medical staff about effective treatments. Respected for her work internationally, she has presented at numerous conferences and workshops about Fragile X syndrome, autism, and other related disorders.

Holly Usrey-Roos

Ms. Usrey-Roos has worked for the National Fragile X Foundation since 2010 and became the LINKS program coordinator in the fall of 2012.  She has been instrumental in the development and ongoing activities of 43 localized affiliates of the NFXF, including the Kansas Fragile X LINKS Group.  She has also played a role in coordinating support for families affected by Fragile X nationally and internationally.  Holly has two children, a son and a daughter, both with Fragile X Syndrome.  In 2006 she founded The Central Illinois Fragile X Resource Group to bring families together and raise awareness in the region.  She currently acts as co-leader of the group.  Holly has been a popular speaker at several conferences, including the NFXF’s international conferences, on topics such as “Working with Your School,” “Media Relations,” “Fundraising,” and “How to Talk to Your Child’s Classmates About Fragile X.” The last of these was made into a podcast for the NFXF.

Donna Beauchamp

Kansas Fragile X LINKS Group Co-Leader, Case Manager, Mother of two w/ FXS, Overland Park, KS

Donna Beauchamp is the mother of three adults. Both of her sons, ages 26 and 31, are fully affected by Fragile X Syndrome. Her daughter is a carrier of the Fragile X gene.

Using life experience and knowledge gained from having children with FX, Donna has worked as an educational advocate, community educator, family support coordinator, and research program assistant. She is currently a targeted case manager serving people with all developmental disabilities across the life span.


7:30—8:00     Registration and breakfast

8:00—8:15      Introduction

8:15—10:15     Behavioral Issues and Remedies, Dr. Braden

10:15 – 10:30  Break

10:30—12:30 Learning Style and Educational Strategies for Reading, Math and Writing, Dr. Braden

12:30 – 1:30   Lunch

1:30—2:30    Breakout Sessions

Families stay in auditorium:  Talking to Students about Fragile X Syndrome, Ms. Usrey-Roos

Educators stay in lunchroom:  “Hands on for Educators” Session for Educators, OT/SLP, Paras and more, Dr. Braden

2:30—3:30    How did they grow up so fast? What you need to know and what your child’s options are as an adult, Mrs. Beauchamp

3:30—4:30    Questions and Networking  (families much be present for the opportunity to win speaker-related gifts)

Who should attend?

Families, educators, occupational therapists, speech and language pathologists, and other providers who care for and work with children and adults with Fragile X Syndrome and Autism Spectrum Disorder and really any disabilities which require help with behaviors and educational strategies.

How much does it cost?

$35 per person which includes continental breakfast, lunch and materials. Certificates of attendance will be provided by the University of Kansas for each attendee.

How to Register?

Please go to to register. Pre-registration is encouraged by February 10th. While we will welcome walk-in registrations on the day of the event, we encourage advance registration to make sure you have a name badge printed and a certificate of attendance, in addition to our having an accurate head count for the food order.  If you want to register in advance but pay on the day of the event, you may do so by selecting “Other Payment Options” and then to pay by check.  We will be able to accept checks and/or credit card payments at the conference.  Scholarships will be available to families affected by Fragile X.  Please email us at if you are interested.

Looking for a Hotel?

Hilton Garden Inn Olathe at 12080 S. Strang Line Road has a block of rooms set aside for February 21st and 22nd. To receive the discounted price of $109.00 plus fees per night, you must call 913-815-2345 and mention the Kansas Fragile X LINKS Group by February 15th.

Spread the word?

Please forward this flyer (PDF format) to anyone you think might be interested in attending: New Directions Conference 2014 Updated or have them go to for this posting.


Please let us know if you have any questions!  You may email us at or call the numbers indicated on the flyer link above.

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